Thursday, May 18, 2017

Alzheimer's and Toes!

Well what do Alzheimer's and toes have in common?  They are both part of my existence. See my daughter told my wife, I am not sure when, as they went to the gym one day it looks like dad has another toe in the water.  Her way of dealing with my dementia and it's progression.  Now I know why my toes hurt all the time, they are not sure what they are supposed to be doing, YEAH!

I must say that the last 6 or so weeks have been very difficult for me.  My head has hurt, my brain has gone off track and I have been outright scared.  See there was I time that this person loved change, he lived for it, he made it happen.  Now no way leave things be.  Do not move a piece of  furniture or painting, it does not play well in my world.

We are moving out of state.  We are in the process of closing on a home in Nevada and this is a major change and has tooooo many arms to it.  Getting everything in line has been a monumental task for me, since the wife works, I have been doing as much of the leg work as I can.  It has literally drain that ½ of a brain cell that I have left.  My brain is presently on life support which good old friend Alzheimer's takes great delight in.   It takes every ounce of consentration that I can get together to work on things and leaves me totally exhausted and really lousey to be around, especially as any type of company.  I need a robot to handle all of this so I can get back to some assemblance of order or thought process in my life. This physically has drained me as well, I am no longer wired to do this type of work and keep it all straight and not be irritable over things.  Unfortunately or fortunately the only way for me to get away is to leave life.

From all of this I have seen in myself a decline and I guess it was going to take place no matter what, after all that is what Alzheimer's does to you.  It sometimes quickly takes you and then other times it is like a cat playing with the mouse it has caught, takes its' time and slowly breaks you down.

I hear that antibiotics of a certain type now cures Alzheimer's and other forms of dementia, as well as drink this and be cured.  Snake oil peddlers are still out there spreading their bullshit and the sad part is that people soak it up and drown in it.

Enough of me, I hurt need drugs, happy drugs or jelly filled donuts.

God Bless and Keep You and This Country of  Ours!
joe

Thursday, April 06, 2017

Alzheimer's Links

Well here I am again finally, have been going to make this post for a couple of months. I start and the old brain just stops.  Thinks are getting not to be much fun anymore, but that is to be expected.  This is a series of emails I have received in recent months.  I am posting them this way, because it is to much for me to post each of them under resources.  Test the links at your own risk and bookmark those that are of interest to you and most helpfull.
______________________________________________________________________________________



Hi,


My favorite aunt was recently diagnosed with Alzheimer’s Disease, and it’s sent my family into a whirlwind. I think part of what’s been so tough is that with the abundance of information on the internet, it’s tricky to separate the credible resources from the speculative, and the productive from the grim.
Luckily, research is my specialty! I’ve been gathering some wonderful resources that will help my family stay educated as the condition progresses without keeping them up at night with worry. I think they will also be helpful to many in your audience, especially if you add them here: http://living-with-alzhiemers.blogspot.com/2013/01/hello.html.
Parent’s Guide: Helping Children & Teens Understand Alzheimer’s
Preparing Your Home for a Loved One with Alzheimer’s: A Caregiver’s Guide
Another World: People With Alzheimer’s Share Their Perspectives
Alzheimer’s Aggression: Causes & Management
Guide to Addiction Prevention for Seniors
Dementia Assistance Dogs
Caring for the Alzheimer’s Caregiver
Helping Alzheimer’s Sufferers Cope with the Loss of a Loved One: A Guide for Caregivers
Learning to cope with and manage Alzheimer’s requires the facts, but not the fear!
Best,
Lisa
______________________________________________________________________________________
Senior Health Resources
Boomer's Roadmap to Aging in Place
Guide to Senior Nutrition
Moving Tips for Seniors
Financial Resources for Seniors
Veterans Benefits for Seniors
Legal Planning for Alzheimer's and Dementia


Hi!

Lately I’ve been devoting my focus to senior health — especially since only 28-34% of Americans aged 65-74 are physically active.

I’ve had the opportunity to speak with some of the elders in my community, and they said although they do want more physical activity, they feel limited in their options. Fortunately, inspiring others to get on their feet is my specialty! I’ve gathered some terrific resources on ways for seniors to lead happier, more active lives, but I need your help distributing them. What do you say — how about here: http://living-with-alzhiemers.blogspot.com/p/in-memory-of.html?










Here’s to happier senior living — because they truly are the golden years!

Thanks for your time,


Marie
________________________________________________________________________________________
Hi,
I saw your website and it was quite helpful.  Thanks!  I'm Linda from Senior Care Helper  We're building a site as a resource for Seniors and their families. 
I thought I'd pass along a few other sites I found useful so maybe your readers might also benefit.
Thank you again.
Best,
Linda Johnson
------------------------------------------------------------------------------------------------------------------------------------\
Message = Hi!

I'm reaching out because I've created a Dementia Caregiving post that you might find useful. It’s about the challenges of taking care of someone with Dementia, how the condition redefines marriage, the importance of self-care, emotions like exhaustion and frustrations are valid emotions and other issues that need immediate discussion and resolution.


Let me know what you think of this idea.

If you find it share-able, would you mind sharing it with your audience?

All the best,

--
Samantha Stein

God Bless & Keep You & This Country of Ours!
joe

Monday, February 20, 2017

Alzheimer's Giveth and Taketh!

I put a comment on a Facebook post and once my ½ brain cell traffic jam cleared up it started to see what I said and what has happened to me since Alzheimer's and I have become such close friends.

After being diagnosed I started this blog over 10 years ago. My wife keeps reminding me why from time to time because I forgot. See I started it for me and me alone. As a kind of journal I guess of what was happening to me.  I never expect to have anything come of it or anyone to read it. Now this will sound like an ego trip and it may well be for the moment.

In this time more than 124,000 people have visited my blog, it is read in over 90 countries, I have 48,000+ steady readers, it is used in over 165 care facilities in the US and other countries. I have a book published, Living With Alzhiemer's (A Conversation If You Will), featured in a documentary by HBO called "The Alzheimer's Project" (I am the only left from it that I can find, that is about 13 other gone since 2008 till 2013), several National Webinars, Alzheimer's Speaks Radio with Lori Bay, blog has won a ton of awards, have been called a hero, strong person, and SOB, hard ass, wonderful, etc.  Who would have ever thought a person like me would garner such attention, certianly not this person. I sit in awe everyday of it. These are some of the gifts I have been given because of this disease, Alzheimer's, Frontoltemporal Dementia and just no brain cells left.

I challenge all the studies and claims and you know it seems they all fall apart at the challenge. There is no cure, no treatments (that really work), and the hope seems at least to me very small that the medical field will ever get their collective heads out of their asses and figure this out. Crap they have had well over 100+ years.  But what the hell, we are still referred to as "THOSE PEOPLE". See I do my very best to tell it how it is, not how I would like it to be or how you want to hear it.

It has taken my freedom from me, I cannot go anywhere without being taken. Go on a walk alone no way I may not return. Once I took my granddaughter to the park by the house, she was about 5 I think. I was lost, she took me by the hand and said it is ok grandpa I know the way home and so she did. Each day it takes another slice of me, this fricken damndable disease.  I have even look straight at my wife while talking and asked her who the hell she was, because I forgot. I can be sitting watching TV or talking and I am gone, not asleep although that happens, just gone my body is there and Joe has disappeared. I no longer can use power tools and build things, I have forgotten more than 3/4 of the computer knowledge I had. I can see what I want to say or do, but cannot get it out of the pathways of my brain. It screams and yells at me to let it out, but I have no control over it. There are times like this that it flows from me, but not very often anymore.

Well my soap opera box is weakening so I will say till next time:

God Bless & Keep You & This Country of Ours!
joe

Thursday, February 16, 2017

Thank You Feedspot

Hi Living with Alzheimer's Team,

My name is Anuj Agarwal. I'm Founder of Feedspot. 

I would like to personally congratulate you as your blog  Living with Alzheimer's has been selected by our panelist as one of the Top 40 Alzheimer Blogs on the web.


I personally give you a high-five and want to thank you for your contribution to this world. This is the most comprehensive list of  Top 40 Alzheimer Blogs on the internet and I’m honored to have you as part of this!

Best,
Anuj

 Anuj Agarwal
 Founder, Feedspot
 Email: anujagarwal@feedspot.com
 Linkedin . Twitter



God Bless & Keep You & This Country of Ours!
joe

Wednesday, January 11, 2017

Sitting and Thinking?

Well here I sit at my computer, trying to figure out what to post but this disease of mine, Alzheimer's does not want to cooperate with me. I had this wonderful post in my head and well I guess it is lost among my brain cells. This is a very frustrating time for me, see for the first 10 years with this friend of mine I was still able to function brain wise to an extent, now I get confused more, remember less and even forget what I am doing. It is part of the process and not much I can do about it. This is what makes me angry and strike out at people and go into tirades. The loss of my independence to go and do as I want is no longer mine. It is hard to explain to others what it is really like. You have to live here in my world and walk the corridors of my mind to know, but I think it would scare the hell out of you it sure does me.

God Bless & Keep You & This Country of Ours!
joe

Saturday, January 07, 2017

Who is in control, Me or Alzheimer's?

Today I was listening to an Internet Infomercial to cure Alzheimer's with this special diet that has cured over 47,000 people World Wide.  Yes, you to can get this miracle food receipe for the small sum of $37.00, what Bull Shit.

This crap erks me, and the people who fall for it. I know they want to get rid of the disease, but it just does not work that way. I wish it did, but the fact is you get it, Alzheimer's and other dementia's get worse and we die from them, PERIOD! If I could i would remove all this crap from the internet, but unfortunately not possible.  I just keep trying to warn those of us that suffer from Alzheimer's, Dementia, Parkinson's, ALS, PCA, Vascular Dementia, Lewy Bodies, etc., if all this stuff truly worked we all would be cured. I notice the Coconut Oil cure is not heard of anymore.

My friends to cure or halt a disease, you need to know the cause, and we do not know the cause of most dementia's, a few we do and can treat to some extent.  I am not an "EXPERT", but for 12 years I have lived in this world and watched friends die and get worse by the day.  For some reason I am still here, maybe because I am such a PITA (pain in the ass), neither heaven or hell want me.

My days are not all fun and games and wonderfull, most of the time I just sit and try to figure out who, what and where am I and why am I.  I get no answers anymore.   I use to talk to myself, it was the only way I got answers that made sense, now? I can start things, but finishing them is another story, I just stop and forget all about them and even wonder why I am doing them in the first place.

I am becoming more demanding and hostile these days and finding it difficult to control my anger and keeping my mouth shut.  I no longer have the control and probably never did.

God Bless & Keep You & This Country of Ours!
joe